Kyle absolutely loves Pee Wee Herman. Second to Tigger he is Kyle's favorite character. I never thought I would ever have to relive the annoying laugh, the goofy characters, or just the weirdness that was Pee Wee Herman.
I find it very interesting the traditions, moments, memories, and pieces of life that our children latch on to. I would have loved to pass down GI Joe, Alf, or the smurfs to my kids for their enjoying pleasure. But no it was Pee Wee Herman that emerged as the favorite. For some reason Ayden is scared to death of Alf.
But beyond tv memories from childhood, and moments of goofiness what else is being passed on? What memories are becoming long lasting?
Recently we were looking through pictures and Ayden got real excited when he saw a picture and practically yelled "Kyle that was when you could walk."
That is going to be fabrics of Ayden and Ellyse's lives remembering when Kyle could walk and play. It already seems like a distant memory.
What are the lasting impacts of our home on them? What will be the affect on them throughout their lives? What are Jill and I teaching them through all of this?
Many times it isn't intentional because we are just trying to survive. How is this going to influence who they become? There is a fine line between only focusing on Kyle and his needs and neglecting other needs. "The tyrany of the urgent" how is todays immediate problems effecting the long term?
As much as we have tried to prepare ourselves for this life, and the different stages of dmd I still feel very unprepared. The energy for many normal things in life gets put into just living. How does this effect the rest of our families lives? Both individually and as a unit?
The strands that make up who we are, are varied and are made up both of the good and bad experiences of life.
Today I can't say how this will effect each of us in our family long term. But it will be a defining strand in each of our lives.
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